Infusions


Well, I scheduled the appointment with a family doctor. Not mine. Mine isn’t on the schedule for the rest of February and they don’t have her schedule available for March either.1 I don’t know the doctor that I will be seeing. I’m not anticipating anything good coming from the appointment, but I knew I had to make it anyway. New doctors and me don’t really mesh well. Actually, doctors in general don’t mesh well with me.2 My doctor has had some cringe-worthy moments, but she does listen to me. She understands that I am trying to take care of myself and I’m not trying to do something that my body cannot handle.3 And she’s encouraged me to exercise in the past.4 I’m hoping that she can talk to the doctor who will be seeing me or leave a note in my chart explaining that I’m not a complete masochist who wants to die from falling off a stair-stepping machine. I sent her an email explaining that I needed her help. I need a medical clearance for the Wellness Center to continue my physical therapy exercises on my own. A form was sent one to you, but I was called this morning & told someone else denied clearance because of the Ehlers-Danlos. Specifically, they mentioned skin involvement, which is mild for me. I know what exercises I can and can’t do without hurting my joints. The only things I was thinking of adding in were Pilates and pool exercise, which are both considered safe for people with Ehlers-Danlos because they’re low resistence, high repetition. I’ve never met the doctor that I’m supposed to see, which is hard for me because I tend to be intimidated by new doctors & feel like new doctors don’t always listen to me. I’m scared if Dr. ******** refuses that the strength I’ve built up since last summer and especially since the surgery will disappear. I’m worried that without continuing to do the exercises I will end up having more surgeries. Can you help? Hopefully, she’ll be able to do something. I also sent her one letting her know that I did try to get an appointment for the mini-pill prescription. I tried to schedule an appointment for the Norethindrone prescription, since it is a high-risk medicine for me, but the prescription was called in without an appointment. I thought you might want to know that I haven’t had any signs of clots while I’ve been on it. I also haven’t had any excessive bleeding while on it. Dr. ******, my hematologist, said that being on birth control is going to give me another year without infusions, but that I will probably need one this coming December or next year sometime based on my ferritin levels. I want her to know that I am trying to do things that I’m supposed to do to prevent future health problems. I’ve been by past doctors accused of not trying to take care of myself. I refuse to be blamed for these things. I refuse to let doctors, nurses, and random office workers5 who don’t know me and who don’t care about my overall well-being sabotage the progress that I’ve made and risk my life in the process. UAB Huntsville is prone to this sort of “well they aren’t on the schedule” and “oh, we don’t have a schedule for next week or next month available yet” thing. They do it to every patient, no matter what is wrong with them. No matter how dire the situation. And I’m not saying my situation is dire, but they’ve done it with my mom when she’s tried to schedule appointments for diabetes and blood pressure. ↩When you have a soft voice and you cry easily, doctors walk all over you. When you have a soft voice, cry easily, and chronic illnesses, they walk all over you while wearing heels that have Lego blocks on the bottom of them, bumpy side down. ↩Or she has acted like she understand this. ↩If she doesn’t support my use of the Wellness Center, then she’s being hypocritical. ↩The person who decided that I didn’t need the appointment for the norethindrone prescription was a receptionist with no medical training. ↩

Blood, Sweat, and Tears


If you considering seven years a long time, then I’ve been using Twitter for a long time. Even if you don’t, that’s longer than most people have been on the site. It’s probably longer than the user @AdmForrestal has been using it, but he’s brought the weirdness in a major way. I would applaud his weirdness or laugh at it if it wasn’t so ridiculous and, to some degree, frightening. This racist human being1 has decided that I defend the opinions that I have so vehemently because I’m working for someone. That’s right. I have a particular opinion because I’m a shill for some company or government agency. Yes, just what any contrarian would do with their life: conform to a particular idea to make money. Because contrarians are all about the Benjamins and not about the whole thinking-for-themselves thing. Uh-huh. But really this guy claimed I’m a shill. @janersm You clearly have been told to ind this post on the internet and make shit up who do you work for? — JamesForrestal (@AdmForrestal) November 9, 2015 And why did he do this? Because he’s nuts. No, I shouldn’t say that, especially since I would chide anyone else who promoted stigma when they were encountering someone who behaved in a difficult manner. His reason was that he believed that I lied about my experiences in hospital emergency rooms. He said that patients don’t get visitors until they’ve been stabilized. That’s not always true. One of my examples of that not being true was back in July of 2012 when a mound of fire ants decided to make me their bitch. I was at the park with my mom and my dad waiting between doctor appointments. We sat under a shady tree because it was hot as hell outside and we happened to sit next to a fire ant mound. We didn’t know that my predisposed-to-atopy2 body had decided that fire ants were just so out of style and that it wanted nothing more to do with them, so it just had to respond with anaphylaxis. Clearly, no other reaction would have been appropriate for that situation. My parents, as witnesses to my fall and the first people that I mentioned the ant bites to,3 were essential to my care that day and to keeping me alive. They were the ones who told the doctors about my medical history. And they were the ones who eventually told the doctors about the ant bites. Before that happened, they thought that my fall and my two fainting spells were a result of the heat4. But the fainting, the hospital visit, and everything associated with that day was all clearly a part of a conspiracy to upset @AdmForrestal. When I mentioned before I “fainted” that we were hanging out at the Park, I was clearly just setting up this ruse. Dad decided we could spend some time under a tree at the park; so did the birds http://t.co/ujNyLHij — Janet Morris (@janersm) July 24, 2012 The geese in the picture included with that tweet were clearly provided by PETA and were part of a liberal media conspiracy to upset this one random Twitter user over three years later. The original caption for that faked picture was “More lazy geese”, which, again, was all part of my clearly faked fall. No one in their right mind would ever insult geese by calling them lazy.5 My first tweet from the ER? Clearly, it was also a big old hoax. I know absolutely nothing about having anaphylaxis. Took 7 or so sticks to get IV started. Pulse being monitored. It was 139 at the park. — Janet Morris (@janersm) July 24, 2012 Obviously, I’ve never ever talked about being a hard stick over the last almost 15 years of having this website. And I’ve never mentioned that I have tachycardia. Those were all totally new occurrences and haven’t happened since. Except on that one day. That’s how you can totally tell that I’m a shill. Because that isn’t an ongoing issue for me. @janersm Idiot, the shock of hives and vomiting is not life threatening after stabilization them bringing them into a room after that haps — JamesForrestal (@AdmForrestal) November 9, 2015 If I did know anything about anaphylaxis, I would have vomited instead of just fainting, having my heart rate go up, developing hives, and being extremely dizzy. And my life wouldn’t have been in danger even when my parents were in the room with me. And when I mentioned that I hadn’t been tweeting during the rest of my visit? Clearly, that was me covering my ass. I must have needed some time to come up with the whole story. I wanted to update when I got discharged but my phone was completely dead, so it's been charging for a few hours. — Janet Morris (@janersm) July 25, 2012 When I talked that night about how hard my father took the trip, I was obviously continuing the hoax. When he had to be hospitalized the next day for stress that included that ER visit, I was also continuing the ruse on this poor Twitter user that I wouldn’t talk to for another three years. Other than that, I'm itchy, sore, have a headache, and have been trying to reassure my dad that it isn't his fault this happened. — Janet Morris (@janersm) July 25, 2012 When I talked about the people who helped me after I fainted, I must have been making that up, too. Oh, and when I fell the principals of Ed White & Hampton Cove did the first aid while Dad called 911. They also helped keep me from — Janet Morris (@janersm) July 25, 2012 getting up. I was stubborn enough that I kept thinking I was okay to get up. The four of them managed to keep me still. — Janet Morris (@janersm) July 25, 2012 I mentioned two random schools in Huntsville in my shout-out for shits and giggles. […]

A Conspiracy of Ants



2
After getting the notice that UAB was closing their OB/GYN office in Huntsville, I sent a request for a first available appointment for an annual exam. You know, the exam that I was I could schedule in October…when they cancelled my birth control consultation without informing me and told me that I could either pay them $90 that I didn’t have if I wanted to get my birth control that day or schedule an appointment for an annual in October and get it then. Obviously, I should have fucked up my finances even more and paid for the $90 appointment because I got this response to my request: Unfortunately we are no longer scheduling annuals due to the closure of our office next month. Your last one was 10/14/15 so you can have one at any time. I show you have Human insurance and MC. You should contact Human for a list of preferred providers. Once you find a new Dr you will need to sign a release form for your records. Feel free to call if you have any questions Needless to say, I was not amused. It wouldn’t be a stretch to say that I was pretty pissed off, so I fired off this response: I understand your office is closing, but this appointment is important and time-sensitive. I went off the Depo, then was rudely told my birth control consultation appointment was cancelled when I arrived for said appointment, and was told that day that I would need to wait until my annual exam at your office to get the birth control prescription. Now you’re refusing to schedule the exam? This birth control prescription is to keep my anemia in check and prevent me from having to undergo infusions. I’ve already had some bleeding because it has been so long since I had my last Depo. And I’ve already started having early signs of the anemia popping up. If I am even able to find a local doctor that takes the Humana & the Medicaid, it will probably be 2 months for me to get in, so I would appreciate you making an exception in this case…especially since part of this predicament is on you guys in the first place. Yes, it’s manipulative. Yes, it’s abrasive. Yes, all of that was necessary. The reality of their office closing on short notice is that it’s putting lives in danger. I know that they still have pregnant patients that they need to see, but they also have cases like mine where birth control is a life-saving medication and they have people who may have diagnoses of cancer delayed by months because they had to transfer their care to another doctor. I am so sick of doctors and their employees acting like routine appointments are unimportant. They may not seem to be important to some patients, but they are actually very important for others.1 And it will take a while to find a doctor who takes my insurances. It always does. Right now, I can’t even get the physician finder on Humana’s website to work. Once it starts to work, I can’t even guarantee that who they list will even taken the insurance.2 What am I supposed to do? Am I supposed to let my health get worse? Am I supposed to just pretend like all of this bullshit, douchenuggetry, and dumbfuckery is acceptable? Fuck that. This is my life that they are messing with and they don’t have a right to jeopardize it. I shouldn’t have to sit here and wonder if I’m actually going to get medicine that I need in time to avoid infusions. I shouldn’t have to worry that lately I’ve been cold on hot days and that I’ve been paler than usual. But this is what I have to worry about when medical offices and insurance companies decide to make arbitrary decisions that endanger my life. I know that neither the office nor the insurance company are intending to harm patients by making these decisions, but that is what is happening/can happen when they cut off proper healthcare. Actually, they’re very important for all of them. ↩Humana has a tendency to list people who don’t accept their plans and not list ones who do. ↩

I Need That Appointment