Tag: Depakote


The Weighty Issues

22
March

We have all experienced some form of discrimination in our lives. I’ve learned, though, that people have this tendency to just accept certain forms as being okay, while they will be ready to “cut a bitch” on others. For example, in Jenn’s entry on weight discrimination, she had some fairly good points, but most people seized on the opportunity to tell her off because she made some generalizations. Oddly, in their comments, they generalized or, in so many words, accused some people of exaggerating what goes on in their lives.

For a little over 10 years now, I have been on a fairly constant stream of psychiatric medication. Now, while I was obese before taking the medicine, my weight skyrocketed on it. In the first year, I gained over 50 pounds. Later, I lost the weight after I had gastric bypass, only to start gaining again after certain medications were added into the mix. A combination of medication-induced hyperthyroidism, the removal of said medicine from my treatment, and the addition of a mood stabilizer [Depakote] at a dose that caused concern for everyone who saw it, except the psychiatrist, seemed to contribute to the regain. I kept telling the doctors that I was gaining weight because of medicine. No matter what doctor I saw, the doctor would say that the gain couldn’t possibly be related to the medicines. They would accuse me of being in denial of how much I was eating, much like this comment. Sometimes, I would doubt myself and think that they might just be right.

When I quit taking Risperdal a while back, I stopped gaining weight. A few times, I would lose the weight, except when I would be close to my period. In the past year, my weight has pretty much stabilized. I have taken 1 form of psychiatric medicine, Effexor, and I have stayed within a limited (20 pounds, which is my general weight gain amount prior to my periods) weight gain & loss range. My eating has stayed about the same, with me only eating more on very rare occasions. So, I would say that that would be fairly good evidence for the cause of the weight gain being related to my medicine and not me gorging on Ding-Dongs and Ho-Hos. (I’ve never had either, btw.)
And, as I pointed out in my response to Angel‘s comment regarding any possible studies linking a difference in treatment with weight, there actually has been at least one.  A group of Johns Hopkins researchers actually did a study that was reported on in ScienceDaily.  The study reported that, “In a group of 238 patients, each 10-unit increase in BMI was associated with a 14 percent higher prevalence of low patient respect.”  Now, this might just be something that applies to doctors, but I have a feeling that it might also apply to some people who work in non-medical fields.

I know that when I was at a skinnier weight, my mom had a sales person almost refuse to let her buy a pair of size 12 jeans for me because they could tell that my mother wasn’t that small.  This wasn’t at some high fashion store.  It was at Walmart in a state with an extremely high rate of obesity.  You would think there would be less judgment in a Walmart.  Of course, I’ve written about disrespect at Walmart, when my mom was pretty much laughed at because she asked for assistance and refused to get a wheelchair cart/scooter for her.  (I know that a lot of people have a bit of a preconceived notion about obese people who use scooters, but my mother didn’t have the strength in her ankle to walk and [a month later] had broken the other ankle because of the lack of strength in her bones.)

And for those who say that the cause of the difference of treatment is related to self-esteem, I must say this.  I hate that kind of statement.  People claim that low self-esteem leads to people being more disrespectful, which I think is shit.  I have a poor body image, but my self-esteem probably borders on too high sometimes.  While a person might hate the way that they look, it doesn’t mean that that person is suffering from some great amount of self-hatred.  A lot of us grew up learning that we are more than our outward being.  My shell may be ugly, but that doesn’t mean that I think I’m unworthy of respect.  And saying that a lack of self-respect might warrant a lack of respect from folks who work in retail is utter crap.  If a customer walks into your store, it is your job to be nice to them.  Even if you think they are ugly, smell bad, have bad hair, talk funny, etc., you are supposed to service them in the same way that you would service someone who is more to your liking.  You don’t get to pick and choose who you’re nice to.  As an employee at a retail store, you become the face of the company and you really do not want to represent the company as being snobbish.  Why? Blog entries could be written, tweets could be made, but more importantly, the business might lose (potential) repeat customers and you might lose your job.

None of us will ever know what any other person goes through on a daily basis.   None of us would really want to know it either.  We can’t walk a mile in someone else’s shoes, and we shouldn’t judge them based on their circumstances either.

Comment » | +internet friends, General, Internet, Mental Health, Purchases, Rants, Sickness and Health

Minority Girl

27
November

Since Jenn had gastric bypass recently, it has made me wonder about my own surgery that took place in August of 2003. I have decided that I probably am no better off than I was the day I had the surgery.

According to the doctors, the following is possible:

Benefits of WLS

Benefits of WLS

    The image is nice, but the following are different for me.

  • I still have migraines. Actually, they occur more often and seem worse.
  • Only recently has my depression leveled off. That probably has more to do with my being too concerned with my physical crap.
  • I still have asthma, and it seems to be growing worse again. This may be due to autoimmune crap.
  • I still have GERD, and it is also getting worse.
  • PCOS was diagnosed post-surgery, though symptoms had been present for years.
  • Metabolic Syndrome was diagnosed post-surgery.
  • I’m assuming that osteoarthritis is considered Degenerative Joint Disease. If so, the official word is that that is getting worse.
  • Quality of life? Well, I guess it’s okay. I’m just used to going to the doctor every week (sometimes every day) these days.

Things they don’t tell you:

  1. Depression may start to get better, but if you suffer from bipolar disorder or a schizophrenia spectrum problem, then you are still going to have problems. You will still have to take meds. If you take any psychiatric medicine, chances are you will gain weight right back. Think I’m joking? Check the side effects on psychoactives.
  2. Weight can be regained without stretching or distorting the pouch. I have regained all but a few pounds, and I have the same size pouch that I am supposed to have.
  3. Vitamins are wretched after a while, and it becomes more of struggle to swallow them down. I am supposed to have chewable ones. I used to do Flintstones…they were bad after a while. Then there were Disney Princess gummies, which barely had any vitamins. Then there were Flintstone Gummies, which were horrible. Now I take like Nature Valley or something. They taste like Jello, which is great…now.
  4. Even if you take the vitamins and iron like you’re supposed to, you can still suffer from anemia, and I mean suffer.

Gastric bypass is something that should never be taken lightly, and I didn’t take mine lightly. I did my homework. For two years, I lost. I lost quickly. I went from 341.3 pounds on the day of my surgery to 250 pounds in those two years. Then I dropped down to 190 after going on a 900 calorie a day diet and being placed on Cytomel for depression. The Cytomel triggered my underactive thyroid to go hyperactive and my body started screwing up. So I was taken off that. My metabolism dropped quickly. Around that time I was started on Depakote at 500mg. It was just a short time later that I was on 3500mg. People have been known to gain weight (for some: 50 pounds) on just the starting dose of 500. Within a year, I had gained 100 pounds. I went off the Depakote, and I quit gaining. Then I had to get treatment for migraines and I was put on Depakote. I gained the rest of the weight back on just the 500 mg dose. Fun, huh?

5 comments » | General

We are the CIA

19
November

The title was just on the CBS Evening News. I thought it was cute. Anyway, so what’s up, world? I’m still alive, I guess. I mean, I’m not dead, and I don’t think I’m undead. ;)

What’s been going on?

I finally got my neuropathy checked out. The doctor I saw forgot to put it in my chart that I had peripheral neuropathy as a result of fluoroquinolone poisoning, so the next week when I had to go back because I was having pain and popping in my wrist, the next doctor I saw at the clinic didn’t believe that I could have possibly reacted so quickly to Cipro. Whatever. He also almost gave up on me having a pulse in my wrist because he couldn’t find it. He got out the doppler, which was the first time I’d had one of those used on me, and checked. He quickly found my pulse in the left wrist, but the right one (which had been easy to find without the thing) was hard to hear. I’m a tough case. He decided I had carpal tunnel, though I wasn’t showing symptoms of that. He gave me a prescription for Ibuprofen (600 mg) and Zantac (75 mg). Now, this was after he saw in my chart that I said I could not under any circumstances take Ibuprofen. He determined that the potential ulcer risk was not that bad, thus the miniscule Zantac dose. (I have been on 300 mg at a time in the past.) He thought that I must have minor bouts of gastritis from time to time since I’m not on a Proton Pump Inhibitor (Prilosec, Nexium, Prevacid, etc.) and that that did not warrant having a warning in my chart. I’m sure that would be news to the various gastroenterologists I’ve had. I don’t take acid reflux medicines, though I have it, because my “tummy doc” prefers to treat it with liquid carafate. If you’ve never had it, imagine taking a piece of chalk and crushing it and mixing it with water. Now, add a little fruit flavor. Imagine downing some of this before every meal. You will now understand why I refuse to take the stuff. Besides, my doc realized that I was no longer taking it and told me that I could live without it. I just have to grab Gaviscon and down 4 at a time. Bleh.

What else?

I finally went to see my psychiatrist again. Fun, right? Apparently, I’m fat. No shit sherlock. Apparently, this fatness is a protection to keep me from ever having to deal with the males of the species. Um, sure. It comes from being abused as a child. Uh…the predominate abuse I received as a child had to do with already being overweight. She then told me that I’m overeating, which is funny because I keep buying food to eat and I don’t end up eating it. I’ve had 3 meals in the past 48 hours. I’ve snacked a little, but only to keep my energy level up. I have yogurt I got weeks ago that I haven’t eaten, and fruit…these are things I ENJOY eating, but I haven’t eaten them lately. Oh, but since I’m obese, I’m one of those people who gorges out on food. I had to lie about my exercise level, because she didn’t understand that when one has chronic pain and various fatigue issues, then one does not necessarily like to get up off her butt and exercise. Of course, she didn’t understand that the lovely Depakote that I used to down 7 at a time of had been a factor in my weight gain. She also debated whether or not I could possibly put on about 30 pounds of “water weight” with my period. (I know, most women put on 3-10 pounds. In my family, we do the 25-45 pound thing.) Well, then, perhaps she can explain how the week after my period I was at one weight, the day before I was 25 pounds heavier (a week later, I know the period coming that quickly is not healthy), then shortly after the period was over (about 3 weeks after it had started) I had lost the majority of the weight. Hmm…doesn’t take a rocket scientist.

I had another drug reaction. I have been taking my Metformin once a day like a good little insulin resistant hypoglycemic (if I hadn’t had hypoglycemia, it would have been more often) for about a year. All of a sudden about 3 weeks ago, I started itching. I had this intense itching ALL over. Anywhere that there was tissue (internally and externally) I was in a painful itching state. My mom and I decided that I should try going off the Metformin. Since I went off of it, the itching has started going away. I have also started peeing more. (I had almost stopped while on it.) I know that was quite an overshare.

Oh, and I’m still doing quite a bit of the care for my mom.

I’m excited about tomorrow. You didn’t think I’d go without saying SOMETHING about New Moon, did you?

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I’m back, I’m back

26
June

Sorry I disappeared. I tend to do that when I’m depressed or manic or something really crappy, but I’m neither. I can’t really explain the feelings I’ve had lately, I guess they’re just run of the mill human ones that people go through on a daily basis. My mood has only been an issue when I’ve been in really bad pain or really tired.

I disappeared to start because I was reading. Then I started staying up at night and sleeping during the day. I found out, by doing this, that I was in less pain and had less of a mood issue than I did by doing the whole normal circadian rhythm stuff. (My therapist and new neurologist think this is a bad idea.) I also found out that my mom was lonely, and that she liked it when I stayed up but stayed off my desktop (the laptop is okay because she can still see me). Well, staying off the desktop keeps me from the internet, so I had to choose between my mom’s well-being and the internet…as I often do, I chose my mom. (She’s sleeping right now.)

I have new doctors and diagnoses. First, the new psychiatrist. Well, actually, this is my second time around with her. She was my psychiatrist before the wonderful people from the A&M Social Work department decided to go to that psych appointment and scare/agitate me so bad that I almost got locked up in a ward. She’s pretty nice, but she believes that my psychiatric problems would all get so much better if I lost weight. When I tried to explain to her that this was a lot more difficult than she could imagine because of my PCOS, she was like, “Well, if you lose weight, that’ll clear up.” That could be true, but it doesn’t make it any easier to lose the weight, when part of the crap that causes that is what makes me keep on the weight to begin with.

Second new doctor: new neurologist. Actually, he may be a repeat of one I saw when I was in high school and my hands were always shaking. (Before I went off the deep end.) He did a neurological work up on me, and determined that:

1. My twitches that I went to the past neurologist for are either myoclonus issues or are because I’m just almost going to sleep and they’re waking me up. I think it’s probably the former since they can happen when I’m wide awake.
2. I have myelopathy (possible spinal cord injury/problem). He doesn’t know what is causing this but he sent me for an MRI on Monday.
3. I may have sleep apnea. He referred me to a sleep specialist.

This brings me to my third new doctor, who actually isn’t a new doctor. He’s my old pulmonologist. He has me scheduled for a sleep study and from what he heard of what I said, he thinks I have obstructive sleep apnea because of my “loud snoring”. The thing is that I don’t snore loudly. When I snore, it’s very quiet. And he’s already determined that he will treat this issue that we don’t even know that I have with a CPAP machine, which is just absolute crap because I’m not going to use one of those things. I would rather use one of the alternative treatments IF that is my problem.

I’ve had to go off my Depakote. Actually, I’m doing that today. Instead, I’ll be on Lyrica to prevent my migraines. Of course, aside from the fact that the Depakote had quit preventing migraines, its ineffectiveness was causing me to twitch like crazy. I was also gaining more weight on it. (I had a time where I wasn’t gaining weight in the past few years, and that time was when I wasn’t on the Depakote.) I asked the headache neurologist to put me on Tegretol. He of course chose Lyrica instead. This will probably help the pain, which is what I should hope for, but honestly, I was kind of hoping that I’d get put on the Tegretol since I know that in my family it helps the problems and it causes weight loss for us. Lyrica tends to knock members of my family out and causes weight gain. I don’t need those side effects.

Also, because my wonderful Part D insurance won’t cover Frova when I have migraines, I had to ask for a different migraine treatment (the Lyrica is just for prevention). My doctor has decided on Maxalt, which is probably going to do the same thing that the Imitrex did…cause my face to get cold, then hot, then cold, while the pain gets worse, difficulty seeing, plus the horrifying pressure until I cry and have to go take something that causes me to fall asleep so that the pain that the treatment causes will go away. I don’t want to take Maxalt. I want to be able to take the Frova, but of course, the insurance company knows best what to put me on for migraines.

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Anger Issues?

6
May

I found out a gem of a comment that my (former) psychiatrist wrote in my chart after my first visit with him. Apparently, in that one session where he was supposed to do a quite long and intensive psychiatric evaluation, he spent 5 minutes with me and determined I had anger issues and severe anxiety. Given that I have a pretty good memory of the session, since this was before I was on Risperdal, all I can really recall is me giving a brief rundown of how bad my depressive symptoms were, telling him I needed a better anti-psychotic, and that I was wanting to come off of the Depakote since I had gained so much weight on it. He had put me on Effexor and Risperdal, then told me I could come off the Depakote because I was “on too much medicine”. (I was on the Depakote, Klonopin, Effexor, and Risperdal.) He then sent me on my way, only billing for a med check.

According to my therapist, in the next session he claimed to do a psych evaluation, which is crap because he never spends more than 5 minutes with me. He always tells me I’m on too much medicine. He ignores me when I tell him which symptoms are worse, and tries to get me to up my Klonopin, even though I’ve told him that I can no longer take it because it knocks me out. (Besides that, I don’t feel I need it because I haven’t had a full-blown panic attack in almost a year.)

He also said that I had the symptoms for Borderline Personality Disorder (which I had previously been diagnosed for, but I did not tell him I was experiencing any of the symptoms for it at the time of any of the appointments) and I guess this is his justification for not paying attention to my ACTUAL problems. Ugh. I didn’t really have any anger issues towards him until I found out about him going through my old parts of my chart to come up with his present diagnosis. Hasn’t he ever heard of actually doing the work himself? Yes, it takes a while to do a psych eval, but it was in his schedule and he would have been somewhat compensated for it.

2 comments » | Mental Health, Rants

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