Well, that was fun. The entry posted before I had written anything. Oops. I guess that’s what happens when you write a blog entry at 2:30 AM.
Let’s see…what’s been going on lately?
I’ve completed 4 weeks of physical therapy. That’s all that will officially be done until after my next orthopedist visit. I’m supposed to work on weights & stuff at the Wellness Center. At my evaluation on Friday, my left hip had strengthened, but my right hip & my right knee had weakened.12 I also learned that my ankles are definitely weak.34 My left hip still has bursitis & weakness in the piriformis, and it’s still showing that there’s something wrong in the joint itself when they do the torturous impingement/labral tear test. And it just keeps on hurting & popping.5 I don’t know how the hip orthopedist will handle this news.
I got my hand/wrist checked out by the hand orthopedist6 almost two weeks ago. I have De Quervain’s Syndrome, which is basically tendinitis and tenosynovitis of the thumb/inner wrist. Typically it’s an overuse injury that moms and gamers get. Mine is from my dad’s anger outburst almost a year ago.78 The doctor put a steroid injection in the joint, which was especially unpleasant since the lidocaine shot was useless9 and he put the steroid injection through the nerve. So anytime I move my hand a certain way, I scream or flinch from the burning pain that shoots out my hand. If the tendinitis doesn’t respond to the steroid, I may have to have surgery on my wrist.
Oh, and I started a store on Etsy. Right now it just has barrettes, headbands, and hair elastics/ponytail holders. I’m planning on adding bracelets, necklaces, earrings, lanyards, and pacifier clips next. Eventually I want to add purses and my mom wants me to branch into doll clothes. I hope the stuff sells & eventually gives me a way to maintain an income off of SSDI/SSI. Fingers crossed, right?
I also need it to succeed to prove my dad wrong. Twice in the last week he’s told my mom that he thinks it’ll fail. He’s hinted at the same to me multiple times. Of course he’s been on an anti-Janet rant for several weeks now.10
It would really help if you bought something. If you can’t buy anything, I understand. Please considering sharing the link. Maybe someone will see something that they want.
I guess that’s all for now. I’ll try to not stay away as long next time.
My right knee started acting up during the warm ups for my hip’s physical therapy sessions. ↩
I hope that this doesn’t mean that I will need surgery on my right knee. ↩
This wasn’t really news to me. They hadn’t been checked since the 90s, but I never completed the strengthening exercises for them back then, so if they’d gotten stronger, it would be the result of a miracle. ↩
I hope I don’t end up with an ankle orthopedist, too. ↩
Part of the popping is because my SI joint is extremely unstable. ↩
There are so many cooks in this fucking kitchen. ↩
As the orthopedist put it as he dictated his notes, “The injury is a result of her deranged father” and his early onset dementia. ↩
Did you know only 5-10% of dementia patients become violent? Dadada and dad have defied the odds. ↩
Many Ehlers-Danlos patients don’t respond appropriately—or at all—to the drug. ↩
If I cook, it’s the wrong thing. If I drive my car, I’m being selfish with his car; he doesn’t understand Nana gave it to me. If I don’t clean up the kitchen or living room on PT days or ask him to clean or move anything, I’m lazy. If I take my mom to a doctor visit or the grocery store, I’m stepping into his territory. Everything I do is wrong. ↩