I’m not sure how much I’ve talked about this on here, but here goes. I have trouble regulating my body temperature. I don’t sweat enough to cool down. I don’t exactly know why. It’s probably due to one connective tissue issue or another.
Not sweating can be dangerous, especially when exercising,12 so when I saw the family practice doctor today, I told her. She said I should talk to my rheumatologist or his nurse. I called the rheumatologist’s office & the nurse told me that she’d never heard of anhidrosis/hypohidrosis34 and that I should call: (a.) my endocrinologist,56 (b.) family doctor,7 or (c.) go to a walk-in clinic.8 I asked was she sure that Sjögren’s/UCTD couldn’t possibly cause a person to not sweat. She assured me that lack of sweat has absolutely nothing to do with either condition.9 And I’m sorry, but who goes to a walk-in clinic for an issue that even a speciality clinic is saying they’re unfamiliar with? Why would you even recommend that?10 If you’re going to recommend calling a doctor, why not recommend a dermatologist or a neurologist. I no longer have either of those, but at least skin and the nervous system have something to do with a lack of perspiration.
I called the family practice clinic back and asked them to leave a message for my doctor. They said she’d call back. She didn’t. I guess maybe it’s been queued for sometime later, but I am not going to hold my breath on it.
On the 18th, when it was 80°F outside, I went for a 45 minute walk & a 18 minute walk. I came back when the left side of my head felt like it was being destroyed by some very angry person with a hammer. I was nauseated, had some gross intestinal issues, my muscles were cramping, my skin was bright red, and I had one or two drops of sweat on my face. The rest of me was dry. It took 3 days to recover. ↩
I tried a short walk this week in cooler weather with similar outcomes, but recovered in hours. ↩
the actual terms for the issue ↩
I used lay terms while describing the issue. ↩
I don’t have an endocrinologist. ↩
Sweat glands are part of the exocrine system anyway, not the endocrine system. ↩
The one that said to call her. ↩
Yeah, really. ↩
That’s why NIH has 14 pages of journal articles on Sjögren’s and anhidrosis. Because there is absolutely no link at all. Ever. And why it’s actually something that has been known to impact patients with Sjögren’s, Ehlers-Danlos, UCTD, MCTD, Fibromyalgia, Dysautonomia, etc., which are all treated by…rheumatologists! ↩
And when it’s a condition that can be fatal? No, you don’t ship someone to a doc-in-the-box when you can’t be assed to understand potential symptoms of diseases you treat every day. ↩
And, in case someone wants to launch into some rant about how they think I’m making this up, go talk to a wall. It will give you all the attention you deserve. ↩
The American medical system is super fucked up. ↩